No more food for me! Life with a GJ-Feeding tube

About | Information | History | Online | Facts | Discovery

1. i also have a PEG Feeding Tube. It's been in a week. glad to see this video
2. keep up the great work of you in life
3. but what happened to your stomach that it doesn't work anymore
4. Thank you so much for the amazing video.  You're awesome
5. I have the same feeding tube I suffer from chronic pancreatitis and epi...good luck to u
6. Good for you for standing your ground on the anesthesia girl. I've been there many times (and made many "enemies" because I inconvenienced them) and it takes real bravery to stick up to a bunch of, for lack of a better term, bullies (who have pretty much have complete control over you, your body and your life) - although I think that term describes them pretty well for the most part when they all gang up and try to make you feel pressured - like you're some kind of wimpy, whiney person who just needs to suck it up so they don't have to do as much work. I've never met a single chronically ill person who wasn't incredibly tough, brave, never complains about anything and certainly doesn't deserve any crap from healthcare providers. We know our bodies and endure significant pain in so many different ways completely silently. It's only a tiny fraction of the time where we have to say "hey. wait. This is not ok. This doesn't feel right and I don't feel right about the decisions being imposed on me." We never say anything until things are really wrong. Every single experience I've had involving my past 7 or 8 (?), maybe more, NJ tubes were horrific. Each time was worse than the next (I seriously can't imagine the horror that I would have probably come up against if I hadn't refused surgery). When I finally became able to start eating again, get off of TPN and decided on my own to pull the long, black, barely-a-tube-anymore (from my body attacking it and my esophagus/digestive system) NJ, I found out that it was hospital policy at both hospitals I was stuck in to sedate any patient undergoing NJ tube placement. I had no words for their complete negligence. I'm so sorry you're dealing with so much. I am truly thankful for every single day I can eat on my own. Hopefully I won't have a Gastroparesis flare up again any time soon and I really hope you'll be able to ditch your tube and every other horrible symptom of Dysautonomia. YOU hang in there girl! You're amazing :)
7. I pray you get well...you are a great young lady
8. I'm a registered nurse and so proud of you for sticking up for yourself. I'm also, like who the hell is this old soul, smart and so together? Don't know if your strengthen came from your experience but, probably you it from birth. Either way you got it girl!!!
9. Why did your stomach shut down?
10. You are very brave.
11. Well said, hope you are doing ok.
12. hi thank you amazinggrace for sharing. now I do not feel the only one, I am glad you did not let them do it under local anesthesia, Oh no I would not recommended to no one. It is the most horrible painful thing to go through. they did not put an endoscopy through my mouth but they push a wire in my stomach while they push air also to the point I felt my stomach was going to explode. And I could not even scream because I have a trache and I am on a Vent to breath so I can' speak anymore. Anyway I am glad you didn't. I am homebound just got my power chair since I have to carry the Vent I can just walk, now I have to use a wheel chair too. My feeding is at 45 too but they are from 7am to 5pm and 7pm to 5am only. and the reason why I got the G tuve is because they say my pneumonias where from aspiration of foof into my lungs, I do not think all were but I do have problems swallowing and also my weight is low. I take Nutren 2.5 its the fourth formula I tried because I couldn't stand the others. Anyway just wanted to say thank you and God be with you and give you strenght and bless you. do you have facebook? take care
13. but i started berating again
14. hey i have one i feel u it was sad i stoped breath
15. I love this !! Your great :) I'm so happy you did what you wonted to do. Good lesson.
16. If you are still using the g tube look at a whole food diet for g tube
    
    https://www.facebook.com/foodfortubies/?fref=nf
17. I love you amazing grace! God bless you
18. If you can swallow saliva you can swallow food
19. Wow, girl. I don't know how you did it for that long. What a pain. I had a Peg tube for almost 2 years and it was annoying but nothing as bad as this. God bless you! I'll pray for you.
20. Bless your heart.